Due to the rising concerns about COVID-19 in Northern Ohio, The ALS Association Northern Ohio Chapter has canceled all non-essential face-to-face contact, including home visits and in-person attendance of resource and caregiver groups until further notice. Alternatively, we will offer virtual visits and groups.
We ask all people planning to participate in our virtual groups to contact the care services coordinator who is leading that particular group:
- Lisa Bruening: firstname.lastname@example.org 440-399-7096
- Amber Johnstone: email@example.com 330-249-1182
- Chelsea Jancewicz: firstname.lastname@example.org 216-367-2977
Here is a link to our current schedule of meetings: 2021 Resource and Caregiver Groups
To receive the virtual meeting link, please contact your care service coordinator.
Due to increased demands, Zoom strongly recommends using your computer audio rather than dialing in. Please use dial in only if a computer connection is not available.
Click here to learn more about Preemptive Actions to Help Prevent the Spread of Respiratory Disease.
Our Chapter offers a full range of services to guide and assist you as you learn more about ALS. Download our Chapter Services Brochure for information on programs for patients, families, caregivers and allied health professionals. Our staff is here Monday through Friday to answer any questions you may have. Please don't hesitate to call or e-mail us for more information.
ALS Care Grant Program
Through the outpouring of support from the Ice Bucket Challenge, The ALS Association Northern Ohio Chapter has established the ALS Care Grant Program.
The ALS Care Grant Program offers up to 50 grants per quarter for up to $500 per grant. Clients must reapply every quarter to be reconsidered. Grants must be utilized for services related to patient care, including durable medical equipment purchase/copays, transportation assistance, speech generating device purchases/copays, home modification, and much more. Download the application and materials below, or to have materials mailed to you, contact the Chapter office at 216-592-2572 or 888-592-2572 or email@example.com.
ALS Care Grant Program Guidelines & Application
ALS Care Grant Reimbursement Forms
Verification of Diagnosis Form (This form only needs to be completed once and is included in the above application packet.)
For additional information, contact your regional care coordinator or call the Chapter office at 216-592-2572 or 888-592-2572.
Eligible patients must reside in the Northern Ohio service territory. Some exclusions apply. See guidelines for details.
Respite Care Program
The Chapter realizes the value of a short-term break for caregivers, who are caring for their loved ones 24 hours a day, 7 days a week. Through the Respite Care program, the Chapter can reimburse each patient up to 8 hours of in-home respite care each month. A brief break helps caregivers stay healthy and able to bear their heavy responsibilities. Download the Respite form below, or to have materials mailed to you, contact the Chapter office at 216-592-2572 or 888-592-2572 or contact your regional care coordinator.
Respite Care Program Overview
Respite Care Program Form
For additional information, contact your regional care coordinator or call the Chapter at 216-592-2572 or 888-592-2572.
Eligible patients must reside in the Northern Ohio service territory. Some exclusions apply.
Thank you for generously
Respite Care Program!
Equipment Loan Closet
The Chapter's Equipment Loan Closet makes used and donated medical equipment available to persons living with ALS. A confirmation of diagnosis may be requested before loans can be approved. Interested families should contact Chelsea Jancewicz to request loaned equipment or call the office at 216-592-2572 or 888-592-2572.
Please note: equipment availability is subject to change frequently. Except where noted below, all loans remain the property of the Chapter and must be returned when no longer used.
Some items may need approval or recommendation from a specialized therapist such as a physical therapist, occupational therapist, respiratory therapist, speech pathologist or nutritionist.
THE ALS OFFICE STORAGE AREA
In most cases, items must be picked up and returned to the office. Items must be clean and sanitized before accepted into the loan closet. Delivery is sometimes available for larger items, however, it can take several weeks to arrange.
Manual Wheelchairs: styles and sizes vary, and may range from transport models to standard models to large, non-folding custom seating with tilt/recline
Power Wheelchairs: styles and sizes vary and subject to change. NOTE: All power wheelchair loans require a seat evaluation by a licensed OT, PT, seating specialist or ATP. If you do not have insurance, the Chapter can provide assistance with the cost of an evaluation.
The Association helps clients who are uninsured or under-insured or those who are awaiting insurance funding and delivery of their own custom power wheelchair. Therefore, the following wheelchairs are the most in demand for persons with ALS:
Complex, high-end power wheelchairs with power backrest tilt/recline and power elevating legs with rehab seating. Makes and models include Pride Quantum (Q6 edge or similar) Permobil (M300 or 600 or C series or similar). Donations of wheelchairs must be 2 to 3 years of age, in good working condition with working batteries and all working parts.
Power scooters: styles and sizes vary and subject to change
Rollator style walkers: (rollators are walker with a seat and hand brakes) styles and sizes vary
Bedside Commode and Roll in Shower Chairs: limited quantity. (these cannot be returned to the loan closet once used)
Bed cane/handle to provide a grab bar to turn in bed or to aid in standing
Suction, BiPAP and cough assist machines
ITEMS NOT ACCEPTED
Hoyer lifts (portable lifts may be accepted if space is available)
Power wheelchairs not in working order (accepted chairs must have working batteries, motor, tires, etc)
Used commodes and shower chairs
Enteral formula (for feeding tubes), Ensure, Boost, and other formulas
Gauze pads and feeding tube supplies
Incontinence products: blue pads, disposable underwear, Depends and Poise pads
Supplies for suction and cough assist machines
Clothing and linen
As an alternative for items not accepted in our loan closet, we recommend MedWish International, Services for Independent Living, Holy Family Hospice, or your local nursing or hospice facility.